Autism, Birthdays, Mistakes and Inhalers

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My son is autistic. It has been one heck of a ride! Mostly the ride has been within myself, learning to accept, be flexible and be open to a new normal. It has taken almost fourteen years and I have by no means arrived.

 Having a birthday party for him was something I swore off a few years ago…and Oh Buddy, how I did swear!! One does not always know what is going on in that beautiful mind and if you go left when he wants to go right, watch out!  I couldn’t take any more tantrums in front of friends, leaving his friends sitting at the table because they ate their cake before he had the first bite or rude comments about the presents he didn’t like and the list is endless.  It is just too stressful….for me. Does that sound selfish? Maybe it is but I think I have a better grasp on my humanity and what I am able handle peacefully.

He started planning his party 2 months ago. I see him maturing in many ways. He has no problem communicating his need for more freedom and less parental control. I didn’t handle that very well when our oldest son communicated the same things to us at the same age, but I see my error in that now. I want to help raise confident, think for your self, respectful and God fearing men-so I can appreciate his hormones and intrinsic make up better than I used to appreciate his brothers’!

No person on earth has more tested, tried, exasperated or challenged this writer, than this particular son. He makes me want to hit the escape button on my emotional hand held and I sometimes  ponder if space from each other would’n’t be a good idea. I don’t know the answer to that but I do know, he is exposing many things within myself.

As I grow deeper in union with Christ, I have found this to be true. That the people and the situations in our lives that are cataclysmic to us in someway, are the very doors of hope that God has purposed. That can look a lot of ways, can’t it? It can look like the accident,the unplanned pregnancy, the lost dreams, the divorce, the illicit relationship, the addiction or the communication break down, just to name a few. God is standing there, purposing good through it, what ever it is. His hope and future for our good, in the pressure, in the refining and in the heat.  When you are aware of it, your eyes are opened! He wants to do something in us and through us. Ultimately, He wants us to so know how loved, accepted, forgiven and pleasing we are to Him- so that knowledge is given freely to others no matter how they behave, acknowledge or appreciate us.

I am getting ready for a big Aromatherapy event this weekend and in my busyness,  I made a mistake while blending some inhalers. I see that I am maturing a bit too. I just looked at the cartridges and asked, what shall I do with you now? Ginger, Lavender, Frankincense and Bergamot…. the blend lent itself to calming anxiety and reducing stress…perfect! I will give one to each of the special boys who are coming to the birthday party tonight and give one to my son and myself! A mistake turned into a blessing! That is what they are all intended to be. Not just for ourselves, but for everyone who surrounds us as well.

Thank you for reading, I really do appreciate it. I am right here walking this path of wholeness with you and I would love to hear from you today.

Autism Awareness!

shine a light on autism

Did you know?

  •  Autism now affects 1 in 68 children…1 in 42 boys.
    Autism prevalence figures are growing.
  • It is one of the fastest growing developmental disorders in the US.
  • Autism costs a family $60,000 a year on average.
  • Boys are nearly 5 times more likely than girls to be on the autistic spectrum.
  • There is no medical detection or cure.

Before I had a child with Autism, I used to think that Autism was an over diagnosed disorder and it was caused by immunizations. After studying much research, I think immunizations can exacerbate the autistic symptoms in children, but our son never had immunizations ,so it is not the only cause.

As far as Autism being over diagnosed, I walk in a different pair of shoes and no longer see it that way any more.

Our son has been in some form of therapy since he was 4. There were some extremely grueling years of day in and day out therapy at home including; vision therapy, occupational therapy, speech therapy and vestibular therapy. We have worked a lot on large and small motor skills through the years. Doing “simple” things like tying shoes or using scissors are not easy for him, but he can do it!! He gets overwhelmed very quickly and moving from one activity to another is extremely hard for him ( and all of us who are in a hurry;-)

Behavioral therapy has been an on going challenge for all of us. “Tools,” that we use as parents, have to change several times in a course of a day or a week. What worked last week like a charm, will not necessarily work today in the same scenario. Nothing has been more difficult in our marriage. It is not that Autism causes divorce, it is just that if you live with a child that has challenges, it brings out all the weakness in your marriage. We have both wanted to leave the situation out of sheer frustration and exhaustion, and we had a time when we were ready to call it quits. In our effort to rebuild our marriage, we knew a number one target had to be parenting this child in as much unity as humanly possible.

Our son has a great desire to have friendships, which can be unusual for someone on the Autistic spectrum, but it is not often reciprocated. And as our son has stayed immature socially, his younger “typical” friends have moved on to other friendships. We have, however, found a few home schooling families who invite our son for play days or sleep overs! It is must needed respite for all of us…he gets tired of us too!!

Our son is very bright and extremely creative! He likes to write movie scripts and draw cartoons. He likes to play Mine craft and play with Legos. He likes to ride his bike with us on the bike trails. Of course he likes video games, but these are used as incentives and rewards for appropriate behavior. Through the years, we have tried several group sports, some successful and some not such a great idea! He had the most success with flag football and we are trying track this spring! He likes to wrestle and rough house with us. I started doing yoga three years ago and working out at the Y,  just so I could be strong enough to handle my fast growing son! Every day takes an immense amount of mental and physical stamina and it is all beyond our human capacity.

When I gave birth, we found out that I had a ruptured uterus and that it had been so for some time! He and I really very easily could have/ should have died. His name means gift, and on our hardest days we remember that.

We have spent the last 13 years trying to re adjust and re learn everything we did with our first three “typical” children. All the while, we keep in mind, he is exactly who he was meant to be! Every day is ground hog day here!! We get up and start the process all over again. I would like to say that “we have no doubt that he will grow up to be a self sufficient human being doing amazing things in the world”….but I would be lying! I know he is capable of greatness and deep down that is who he is, but we have so many days that we struggle and feel inadequate.  He is like all of our other children in this respect; we give all the tools, love, and encouragement we can give and he will make his own choices. Until then, we pray,  we move forward,  we learn and grow one minute and one day at a time<3