Autism, Birthdays, Mistakes and Inhalers

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My son is autistic. It has been one heck of a ride! Mostly the ride has been within myself, learning to accept, be flexible and be open to a new normal. It has taken almost fourteen years and I have by no means arrived.

 Having a birthday party for him was something I swore off a few years ago…and Oh Buddy, how I did swear!! One does not always know what is going on in that beautiful mind and if you go left when he wants to go right, watch out!  I couldn’t take any more tantrums in front of friends, leaving his friends sitting at the table because they ate their cake before he had the first bite or rude comments about the presents he didn’t like and the list is endless.  It is just too stressful….for me. Does that sound selfish? Maybe it is but I think I have a better grasp on my humanity and what I am able handle peacefully.

He started planning his party 2 months ago. I see him maturing in many ways. He has no problem communicating his need for more freedom and less parental control. I didn’t handle that very well when our oldest son communicated the same things to us at the same age, but I see my error in that now. I want to help raise confident, think for your self, respectful and God fearing men-so I can appreciate his hormones and intrinsic make up better than I used to appreciate his brothers’!

No person on earth has more tested, tried, exasperated or challenged this writer, than this particular son. He makes me want to hit the escape button on my emotional hand held and I sometimes  ponder if space from each other would’n’t be a good idea. I don’t know the answer to that but I do know, he is exposing many things within myself.

As I grow deeper in union with Christ, I have found this to be true. That the people and the situations in our lives that are cataclysmic to us in someway, are the very doors of hope that God has purposed. That can look a lot of ways, can’t it? It can look like the accident,the unplanned pregnancy, the lost dreams, the divorce, the illicit relationship, the addiction or the communication break down, just to name a few. God is standing there, purposing good through it, what ever it is. His hope and future for our good, in the pressure, in the refining and in the heat.  When you are aware of it, your eyes are opened! He wants to do something in us and through us. Ultimately, He wants us to so know how loved, accepted, forgiven and pleasing we are to Him- so that knowledge is given freely to others no matter how they behave, acknowledge or appreciate us.

I am getting ready for a big Aromatherapy event this weekend and in my busyness,  I made a mistake while blending some inhalers. I see that I am maturing a bit too. I just looked at the cartridges and asked, what shall I do with you now? Ginger, Lavender, Frankincense and Bergamot…. the blend lent itself to calming anxiety and reducing stress…perfect! I will give one to each of the special boys who are coming to the birthday party tonight and give one to my son and myself! A mistake turned into a blessing! That is what they are all intended to be. Not just for ourselves, but for everyone who surrounds us as well.

Thank you for reading, I really do appreciate it. I am right here walking this path of wholeness with you and I would love to hear from you today.

Sorrow And Joy

IMG_3637Photo by Gabrielle Allman

Can you  be grateful for everything that has happened in your life-not just for the good things but for all that has brought you to this day? Remember, it was the suffering of God’s Son that brought forth a family of people known as Christians.  My own suffering is what God used to bring me to where I am today.

Right in the middle of the tears, the dance of joy can be felt. Seen from below, from a human perspective, there is an enormous distinction between good times and bad, between sorrow and joy. but from above, in the eyes of God, sorrow and joy are never separated. Where there is pain, there is also healing.  Henri Nouwen

I found an old photo album that I had made my husband for his 4oth birthday.  I had asked people to write him notes or letters of how he affected their life. I peppered the letters with pictures of the writers and our family. Looking upon it made me smile and I was so grateful that I had the thoughtfulness of mind to do that when I did, for our mothers are no longer here with us. Their letters are especially special!

But looking at the album also brought a deep sense of gravity to all of the trials and tribulations we have been through. There have been so many, down- right, ongoing, hard times, with little release. I haven’t always handle them with grace. I have had an emotional break down and I have tried escaping. I understand what Nouwen is saying about our perceived distinction between good times and bad times.  And I can also bear witness to what was the apparent worst time of my life, bringing the exact change and healing that I needed.

We are all on this journey together. We can help each other become more grateful for life even with pain. God is hidden in the pain and suffering of the world, and we get to reach out in compassion and show our love to others…that is the point<3

 

 

National Autism Conference-Getting There.

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We are blessed to be able to attend the National (and there are inter-national attendees here as well) Autism Conference at Penn State University this week! I thought I would blog nightly and reflect on the things from each day.

So now, I will back up and start at the beginning of this story :-)We never know how things are going to play out with our son in any given situation.  We have been prepping him all summer about this trip, but we cannot be sure how he is interpreting any thing. He is typically not happy about any plans we make that he hasn’t made, and he always complains, so we are used to that! We have to sell him on any thing we do except anything having to do with eating or playing video games of course!!

About 30 minutes into our trip a few incidents happened that made my husband pull the car over in a fury and make me want to say; “take me back home, I don’t want to go with either of you!” Sometimes it is one thing after another with our son. Things that make sense to him I guess, but drive us absolutely bonkers and add an incredible amount of stress to our marriage. During this frustrating scenario that was going on, my husband bit his own tongue by accident, enough to make it bleed!! It was just all so awful! I was angry and frustrated, they were each angry and frustrated, and then my heart went out to my husband because things like this happen so frequently. There was just nothing to say that was going to be helpful, I could only sit in the salty silence of acceptance. My flesh wanted to go home but I got out my guitar instead and started singing my songs.20170730_200513

We got through unexpected traffic and dinner ,which continued the “ordeal”, and made it to our room. The pool at the hotel is very nice and relaxation came, when we all got in the whirl pool. Peace…

When our son hit the bed, with all of it’s hotel comfyness and pillows, it didn’t take him long to go out! He looks so peaceful when he sleeps, all of that frustration he deals with in a day  fades away and it is well with my soul.20170730_223916