Autism Awareness!

shine a light on autism

Did you know?

  •  Autism now affects 1 in 68 children…1 in 42 boys.
    Autism prevalence figures are growing.
  • It is one of the fastest growing developmental disorders in the US.
  • Autism costs a family $60,000 a year on average.
  • Boys are nearly 5 times more likely than girls to be on the autistic spectrum.
  • There is no medical detection or cure.

Before I had a child with Autism, I used to think that Autism was an over diagnosed disorder and it was caused by immunizations. After studying much research, I think immunizations can exacerbate the autistic symptoms in children, but our son never had immunizations ,so it is not the only cause.

As far as Autism being over diagnosed, I walk in a different pair of shoes and no longer see it that way any more.

Our son has been in some form of therapy since he was 4. There were some extremely grueling years of day in and day out therapy at home including; vision therapy, occupational therapy, speech therapy and vestibular therapy. We have worked a lot on large and small motor skills through the years. Doing “simple” things like tying shoes or using scissors are not easy for him, but he can do it!! He gets overwhelmed very quickly and moving from one activity to another is extremely hard for him ( and all of us who are in a hurry;-)

Behavioral therapy has been an on going challenge for all of us. “Tools,” that we use as parents, have to change several times in a course of a day or a week. What worked last week like a charm, will not necessarily work today in the same scenario. Nothing has been more difficult in our marriage. It is not that Autism causes divorce, it is just that if you live with a child that has challenges, it brings out all the weakness in your marriage. We have both wanted to leave the situation out of sheer frustration and exhaustion, and we had a time when we were ready to call it quits. In our effort to rebuild our marriage, we knew a number one target had to be parenting this child in as much unity as humanly possible.

Our son has a great desire to have friendships, which can be unusual for someone on the Autistic spectrum, but it is not often reciprocated. And as our son has stayed immature socially, his younger “typical” friends have moved on to other friendships. We have, however, found a few home schooling families who invite our son for play days or sleep overs! It is must needed respite for all of us…he gets tired of us too!!

Our son is very bright and extremely creative! He likes to write movie scripts and draw cartoons. He likes to play Mine craft and play with Legos. He likes to ride his bike with us on the bike trails. Of course he likes video games, but these are used as incentives and rewards for appropriate behavior. Through the years, we have tried several group sports, some successful and some not such a great idea! He had the most success with flag football and we are trying track this spring! He likes to wrestle and rough house with us. I started doing yoga three years ago and working out at the Y,  just so I could be strong enough to handle my fast growing son! Every day takes an immense amount of mental and physical stamina and it is all beyond our human capacity.

When I gave birth, we found out that I had a ruptured uterus and that it had been so for some time! He and I really very easily could have/ should have died. His name means gift, and on our hardest days we remember that.

We have spent the last 13 years trying to re adjust and re learn everything we did with our first three “typical” children. All the while, we keep in mind, he is exactly who he was meant to be! Every day is ground hog day here!! We get up and start the process all over again. I would like to say that “we have no doubt that he will grow up to be a self sufficient human being doing amazing things in the world”….but I would be lying! I know he is capable of greatness and deep down that is who he is, but we have so many days that we struggle and feel inadequate.  He is like all of our other children in this respect; we give all the tools, love, and encouragement we can give and he will make his own choices. Until then, we pray,  we move forward,  we learn and grow one minute and one day at a time<3

 

 

 

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